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In September of 1998, a beautiful baby named Grace Anne was born. Grace was a healthy, vibrant baby and toddler, just like any other little girl. But most of all, Grace was such a loving and caring little girl. She enjoyed playing soccer, swimming, and gymnastics.
In February of 2006 Grace's life and those of her family changed in an instant. Grace had gone to school just like any other day but after recess she began to experience some upper back and neck pain. By the time she reached the nurse's office she was in extreme pain and crying uncontrollably. The school contacted her parents immediately and her father arrived within 20 minutes, but by the time he reached the school, Grace was unable to move from the neck down. She was rushed to the hospital by ambulance and continued to get worse.
Grace had suffered a stroke in her spinal cord that left her as a quadriplegic. She was admitted to the Intensive Care Unit where she stayed for 5 weeks. During that time, a tracheotomy and g-tube were inserted. Grace had also aspirated causing lung problems, including pneumonia.
In March of 2006 Grace was transferred to Baltimore, MD for rehabilitation as an inpatient. At the end of August Grace returned to school where she entered the 3rd grade. Due to her continuing medical needs, Grace has a nurse in class with her at all times. Grace is doing very well academically as well as socially and fortunately, the stroke did not impair Grace's mental ability.
Grace continues to go to physical therapy and occupational therapy locally between two-to-four times a week. She rides a special bike at home, uses a "stander" regularly, and does exercises with her Mother daily. Grace also uses a Lite-Gait Trainer at therapy which enables her to practice walking with support. A "stander" is also provided for her at school.
Grace's future is unknown, but her family knows where they would like her to be. She has accomplished more than the doctors ever thought possible and her family will do everything in their power to see that she accomplishes the maximum. Grace has the ability to move her arms, neck, and head, although her arms and hands are still weak but are improving. There has been some voluntary movement in her legs and toes, but not on a consistent basis. Grace still has medical needs - lung issues, urinary tract issues, etc. Grace has also developed a severe spinal cord curve which she will require her to have surgery in the summer of 2007.
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